Sending The Kids

School is back in session – for most kids I’d imagine. Mine included – at least 2/3rds of them.

After the summer break I thought it’d be a welcome…well…break, but it has been anything but since they’ve gone back.

I will say this, although the early mornings are a clear reminder of on of the reasons why i loathed school soooo very much, at least I get a few hours to accomplish some things I’ve been trying to accomplish since summer break started.

Hopefully as I get more accustomed to the schedule it will indeed be a break that will allow me to get more things around the house accomplished. During the mornings at least. And now that I’m looking at more AM free time, I might try to take a bike ride. Coming from a person who can’t find the time to squeeze in some crunches, It may be more difficult than I had anticipated. let’s hope not.

And oh yeah, I’m starting the feel the need for my tysabri fix ever so slightly. I suppose after almost ten years of this stuff, it is more obvious the need for my medication. Or the signs of it wearing off are much more established so I notice the need for a refil. if i’m putting it right. That’s why I consider it my Tysabri fix. I need it much like, I suppose, a drug addict needs their fix. I’m addicted to my Tysabri treatment…could be worse.

Waiting on Doctor

As I sit here in the doctor’s waiting room, I keep perciverating on something that happened yesterday. But first let me say the physical is a yearly doctors OK that I can indeed continue to receive my Tysabri dosing. Because lawyers…

Anyway, back to what happened yestetday…I went to my parents so that along with my kids spending time with their paternal grandparents I could get a bike ride in at PCT.

The trail was sweet. I was going pretty fast. When I hit the path I wanted to continue that trend. And I vertaonly did. Bested a couple weekender jersey wearing roadies (not that its a competition). I was riding so fast I broke my 10MPH average for trail/path cpmbined. It felt good, except for the puking mid path. That really sucked. It was a vomit comet, as I never stopped riding. Only the hardcore!

EBV, D3, Smoking and Sex

I have have at least 3/4 of those…and MS. Damn it. I probably have Epstien-Barr too, but I can not verify that at this time.

If only I had known in my 20’s that I shouldn’t smoke…oh wait, I did. Stupid me for not listening to myself, society, and science. So stupid on my part. I did give it up though.

Perhaps if I didn’t spend so much time in my basement playing video games I’d have gotten enough D3 (sunlight) to ward off the multiple sclerosis.

And being a dude should’ve helped,. but it didn’t. Just like me to buck the trend. Something I’ve been doing my entire life.

 

And there in lies the problem with MS. One of the many actually. You’ll spend so much time thinking how/why did I get this, what did I do to deserve this? Well, in my case at least, it won’t help to contemplate those things. I have MS. There is no going back to a time when I didn’t have MS (or at least know it). It is impossible as time travel, so I do not think pondering how or why it has happend will be of any benefit. Especially since there is no definitive answer at this time.

Of which I can be sure is that I do have a diagnosed case of Multiple Sclerosis. There is only one thing to do now.

Look forward.

That means a few simple things:

1.) Taking care of myeself

2.) Take my MS medication as prescribed.

3.) Exercise and stretch.

4.) Try to maintain a + attitude.

Don’t bother looking back, it only leads you to a what-if scenario that won’t be at all beneficial to the current scenario.

Wednesday

Wednesday is so close

I need my dose so badly

The  fatigue is here

This haiku is brought to you by a Multiple Sclerosis sufferer in need of his Tysabri administration. Me.

7 day warning

It is Wednesday, one more week until my infusion. The sweet relief that is Tysabri only awaits seven more days. I anxiously await its administration, and moreover, the relief that follows.

That does mean, on the other hand, there is at least one more week of pretty harsh knee pain* and general muscle tightness on the whole left side of my body. It started in my calf and worked its way all the way up my left side over the last decade. I really notice it in my neck during the weeks proceeding my infusion.

But lets not worry about now or even the time leading up to it. Or even the needle stick. Nor the PML risk. Think about the post infusion bliss that follows the dose of Tysabri. It’s worth it! A near normal life with MS.

 

*My knee feels like it really has to crack, but when I crack my knee it only relieves the pain/ache somewhat.

May?

I really, really enjoy eating very good food. If it’s not fast food, I’m trying to eat something quality and healthy. Then I read this title:

Intermittent fasting may benefit people with MS

(Emphasis mine)

Ok, it MAY help? Then I MAY try it.

Which means I won’t. I’ll need definitive proof that fasting helps with MS. Then I might try to stop eating so much. I do love good food, and even sometimes I’ll treat myself to s****y food. Sometimes I don’t eat much but often I eat too much. I love good food. I am not going to stop eating without proof that it helps.

 

 

Summer

Yes, complaining about the heat & humidity again. Specifically, how in my neck of the woods it seems to be insanely hot and humid though the weekend plus Monday for the last month.

It makes going outside tough. Everything I do seems harder. Yet, I preserver – or at least try. I’m going to try and get a bike ride in today. It won’t be too long, no Wisconsin or anything, probably just up to mchenry train station or down to the fox, depending on the wind.

I can’t use the weather as an excuse all the time!

Sorry Everybody

But the blog spammers have found my new blog and are creating new accounts on my site. I’ve had to disable the ability to register new accounts and delete all the users (except myself, of course).

For linkspam the unscroupulous go after my blog detailing my experience with MS. STAY CLASSY BLOG SPAMMERS. Lamers need a bot to do their work!

This in conjunction with the bookface integration not working and I fear my site will not get any traffic. Then again, when it was integrated with bookface, I don’t think anyone bothered coming here anyway. Still planning on fixing that…when I can.

And I’m awaiting my next Tysabri dose in two weeks! This is the period when I start feeling a sort of withdraw. And it’ll get worse until I am reupped on my Ty. Guess that’s the price you pay when your PML titre level is right in the danger zone.

Not that I’m complaining

But I woke up cold during the night.  After the blazing heat and HUMIDITY, we finally have a weekend of good weather. It gone down to a bone chlling 11.6°C (63°F). At least it’s bone chlling when your fans are blowing on you full blast.  It’ll be gone tomorrow as the 90% humidity returns. So will the air conditioning. As much as I hate using it, I just can’t stand the high humidity. It feels like you can’t loose any heat.

It’s been a rough summer for humidity. I’ll need to hop on the bike, as it’s like being in AC when you’re riding at speed. Plus I need to shed some of the weight I’ve gained from not riding.