Tainted Kernel

This is my list for my upcoming appointment so that I can easily retrieve it when needed.

1.) Address Numbness that occurred first in my lip on my left side and then later the numbness occurred in my right hand – scary as I’ve not had any (noticeable) activity on the right side of my body.

2.) Ask to be infused every 6 or 7 weeks. I think 8 is too long and allowing very slight progression. The last two weeks are usually rough. Discuss PML risks with Dr K when asking.

3.) Left side seems more affected than what was previously realized. feeling tightness all the way up my body, even up to neck/shoulder area on left side. Relief comes after Tysabri treatment.

X.) Green card – prepare application and bring the form which dr. K  must sign.

On Thursday, November 15th. And I am already feeling so much better. My most obvious MS pain, my spastic calf, is already rapidly abating. In fact that whole left side of my body, which tends to ‘tighten up’, is relaxing. How very nice! Even if the untightening process is anything but fun.

Neat-o! Impending doom!

Big thanks to the AIC nurse, Ivanna, for the single stick. With the skill of a guided missile she punctured my vein quickly. I ALWAYS appreciate a quick stick! THANK YOU!

Food. Yummy food. Even hospital food is good when you’ve got a Tysabri drip going.

Good thing the family truckster is 4WD (actually AWD)!

I too have discovered bicycling to combat my MS.

Except I don’t cycle. I ride my mountain bike.

Yes, there is a difference. If you don’t realize it, you don’t ride a mtn bike or are part of the problem.

Elitest cyclers.

I haven’t sold my soul to the public, other than this site…that’s probably why there wasn’t an outpouring of support from the dumb and ignorant populace when I disclosed. Nobody cared. Life as usual.

But if you’ve sold your soul to the public and disclose that you have MS, you get an outpouring of emotional support from people that don’t even know you.

Take the most recent example: Selma Blair

No? You must be as out-of-popular-touch as me.

How about Montel Williams?Jaimie Lynn Sieglar? Jack Osborne?

So what do you have to do to be reached emotionally in this country? Sell your soul to the public?

Nope, not gonna happen. I’m doing just fine dealing with this on my own. I do not need the public’s support.

The public eye sucks, and all that watch are hypocrites anyway.  I don’t need their hollow sympathy.

Holy wow. And I thought a root canal was rough!

I’m not sure if I explained it before….a filling fell off my #14 molar a couple of weeks back. Went to the dentist to have Dr. J look. Nothing but bad news. Root canal AND gum lengthening.

I had, up until that point, had nothing more than a cavity filled. Which in retrospect is kids play when it comes to dental work. I’ve feared a root canal all my life, and finally had to face one. It was rough. But in comparison to the gum lengthening, it was nothing.

I thought I had luckily escaped the gum lengthening, which is a HUGE misgnomer, after Dr. Trinh (the endodontist) completed the root canal, he said that the gum lengthening didn’t appear necessary.

Cool, I thought. Save me from some oral trauma. That is until a week or so later when Dr. J’s (regular dentist) office called me saying I see you had gotten that root canal, but you didn’t get the gum lengthening. To which I replied Dr. Trinh didn’t think it was necessary. The receptionist said, “I’ll check with the Dr. and call you back.”

After a few hours the receptionist called back and stated, “The Dr. feels gum lengthening is a necessity. ”

F**K!

No escape. So I made an appointment to return to the Mouth torturer in a few days. Dr. Trinh obliged by removing a portion of my jaw bone after cutting open my gums.

Wow. That sucked even more than a root canal. big time. Let me put it like this:

After the root canal Dr. Trinh suggested tylenol or ibuprofen for the pain. The pain lasted through the evening, but was pretty much OK after that.

After the gum lengthening Dr. Trinh wrote me a prescription for antibiotics, antibiotic mouthwash, and norco. And thank goodness. I don’t think I could’ve made it through the first two days without it. it is still kind of iffy, and I’m only taking a half a norco at this point. Which is important as he only prescribed 12. I miss the good ‘ol days when you can spend your recovery period in an opiate derived haze, but society can’t handle their sh*t so we all have to suffer.

Like I said, HOLY WOW. That sucked! Big time. But I no longer fear the root canal like I did before. Just gotta set the bar higher.

Bad. Actually. Badly. I need my Tysabri badly.

It was really warm midday. Nothing excessive, but up there. Especially in the baking sun. Which I was in while I was playing with Kei before the kids started getting home from school. We were playing hard – or at least it seemed to me. I was hot. I couldn’t cool off. Then it started happening….

I don’t know wheat to call it, but my vision was disturbed. It was hard to look at my phones keyboard. The specific key on which I was focusing was hardest to see.  It was weird. Really weird. It was, and this is the best way I could put it, like I had a tear in my vision. Or a jagged line of light, mostly concentrated in my left eye. Makes me think my right brain is the most afflicted.

I’m not sure what happened, but I’m betting it was the Multiple Sclerosis exacerbated by the heat. After a thorough freak-out in my head – a lot of what ifs, I sat down in the shade. Aside from getting eaten up by mosquitos – chilling in the shade wasn’t getting rid of the visual disturbance. So I went and filled my water bottle and soaked my cooling towel. Chilled out and tried to relax while I hopefully cooled off.

I eventually did, and the vision problem subsided. As always, it is the fear of possibly having an attack that scares me most. A lot of what ifs where going through my head during that time.

Now so very clearly I need my dose of Tysabri. Stat like!

I have to wait until Thursday for my dose. Wednesdays were taken. Two months out. Damn cancer patients : P