Oh I Need My Ty

Bad. Actually. Badly. I need my Tysabri badly.

It was really warm midday. Nothing excessive, but up there. Especially in the baking sun. Which I was in while I was playing with Kei before the kids started getting home from school. We were playing hard – or at least it seemed to me. I was hot. I couldn’t cool off. Then it started happening….

I don’t know wheat to call it, but my vision was disturbed. It was hard to look at my phones keyboard. The specific key on which I was focusing was hardest to see.  It was weird. Really weird. It was, and this is the best way I could put it, like I had a tear in my vision. Or a jagged line of light, mostly concentrated in my left eye. Makes me think my right brain is the most afflicted.

I’m not sure what happened, but I’m betting it was the Multiple Sclerosis exacerbated by the heat. After a thorough freak-out in my head – a lot of what ifs, I sat down in the shade. Aside from getting eaten up by mosquitos – chilling in the shade wasn’t getting rid of the visual disturbance. So I went and filled my water bottle and soaked my cooling towel. Chilled out and tried to relax while I hopefully cooled off.

I eventually did, and the vision problem subsided. As always, it is the fear of possibly having an attack that scares me most. A lot of what ifs where going through my head during that time.

Now so very clearly I need my dose of Tysabri. Stat like!

I have to wait until Thursday for my dose. Wednesdays were taken. Two months out. Damn cancer patients : P

The revenge of the 80’s

It seems as though my extravagant youth has caught up to me. I had a huge  – likely unnecessarily large – filling in what I believe to be my #14 molar. It was a gargantuan filling. You’ll be impressed if I ever can find it and take a picture.

Let me get to last week. My kids were binging on starburst, which due to my younger two have to be unwrapped and given to them. Whilst unwrapping and distributing starbust, I unwrapped a cherry one. Thought to myself, I’m kind of hungry, I could use a little snack. Popped in my mouth. Started chewing.

One of the worst decisions I have ever made.

I realized that when I was chewing and felt a significantly sized piece of metal in my mouth along with the starburst.

When I first got it out, I thought my tooth had simply decayed and disintegrated and that was like a portion of the broken tooth. Looked really nasty. But I’m happy to say I did not panic. Didn’t really bother me much.

I did, however, realize that this was probably serious. So I took it upon myself to ring the dentist and make an emergency appointment. Unfortunately it took almost a week due to my procrastinating* and my dentist, who is wonderful, not having convenient office hours for my particular situation. Like I said I wasn’t in pain…physical at least. Sweating it was kind of hard. As it most usually is the worst part.

Anyway I got into the dentists on a Monday, and I could tell by her reaction as soon as she walked into the room.it wasn’t good. It wasn’t. At all. It was terrible. Pretty much my worst dental nightmare.

A visit to the endodontic studio.

Don’t understand? Lucky you. Let me put it this way:

Root Canal

I get home after stopping at the pharmacy to pick up the antibiotics my lovely dentist was nice enough to prescribe. And I break the news to my loving wife. I am filled with worry about the procedure I now have to face.. Most of the people I’ve heard talking about root canals are usually horror stories. My wife tells me they’re no big deal. My mom tells me they are horrible. My dad says no big deal. The internet, as expected, is nothing but horror stories. The anxiety is what destroys you!

So Wednesday arrives. I get to the studio early. Wait for about an hour to see Dr. Trinh. I was so nervous it was indescribable the amount of anxiety I felt. I sit down in the chair. Dr. Trinh goes over my options. One of which is to root canal the two molars surrounding the damage molar. He stated that the teeth have irreversible plaquitis. I declined, slyly stating that we should just go with what has already been planned.

He then injects me. The first round wasn’t too bad…like shots from a dentist. But the second round – I still fell those to this day. My jaw is still sore. Whatever he used really worked though. As I did not feel a thing during the entire procedure.  There was A LOT of drilling I could hear – which occurred to me today I did not smell that burning smell that is common during fillings at the dentist. But the pain was absent.

A bit under two hours after Dr. Trinh started, he was done with my root canal.  What a relief. It certainly wasn’t fun, but it also wasn’t the terrible experience I was expecting. I suppose going in with the lowest possible expectations really doesn’t set a high bar for a root canal. So high marks to the crew at Renovo and Dr. Trinh.

And then after I got home the numbing agent wore off and the pain set in. It was pretty harsh for a few hours. And all Dr. Trinh suggest was ibuprofen – NO – or tylenol. Wasn’t good enough for the few hours after I got home.

And hopefully when I follow up with Dr. Jaffrey she’ll have better news about those two molars that Dr. Trinh said would have to be canaled. C’mon conservative dentistry! I should expect for the worst, which I do, but I hope for the best at the same time.

*Avoiding what I ultimately knew would be a bad outcome.

Sending The Kids

School is back in session – for most kids I’d imagine. Mine included – at least 2/3rds of them.

After the summer break I thought it’d be a welcome…well…break, but it has been anything but since they’ve gone back.

I will say this, although the early mornings are a clear reminder of on of the reasons why i loathed school soooo very much, at least I get a few hours to accomplish some things I’ve been trying to accomplish since summer break started.

Hopefully as I get more accustomed to the schedule it will indeed be a break that will allow me to get more things around the house accomplished. During the mornings at least. And now that I’m looking at more AM free time, I might try to take a bike ride. Coming from a person who can’t find the time to squeeze in some crunches, It may be more difficult than I had anticipated. let’s hope not.

And oh yeah, I’m starting the feel the need for my tysabri fix ever so slightly. I suppose after almost ten years of this stuff, it is more obvious the need for my medication. Or the signs of it wearing off are much more established so I notice the need for a refil. if i’m putting it right. That’s why I consider it my Tysabri fix. I need it much like, I suppose, a drug addict needs their fix. I’m addicted to my Tysabri treatment…could be worse.

Waiting on Doctor

As I sit here in the doctor’s waiting room, I keep perciverating on something that happened yesterday. But first let me say the physical is a yearly doctors OK that I can indeed continue to receive my Tysabri dosing. Because lawyers…

Anyway, back to what happened yestetday…I went to my parents so that along with my kids spending time with their paternal grandparents I could get a bike ride in at PCT.

The trail was sweet. I was going pretty fast. When I hit the path I wanted to continue that trend. And I vertaonly did. Bested a couple weekender jersey wearing roadies (not that its a competition). I was riding so fast I broke my 10MPH average for trail/path cpmbined. It felt good, except for the puking mid path. That really sucked. It was a vomit comet, as I never stopped riding. Only the hardcore!

Summer

Yes, complaining about the heat & humidity again. Specifically, how in my neck of the woods it seems to be insanely hot and humid though the weekend plus Monday for the last month.

It makes going outside tough. Everything I do seems harder. Yet, I preserver – or at least try. I’m going to try and get a bike ride in today. It won’t be too long, no Wisconsin or anything, probably just up to mchenry train station or down to the fox, depending on the wind.

I can’t use the weather as an excuse all the time!

Not that I’m complaining

But I woke up cold during the night.  After the blazing heat and HUMIDITY, we finally have a weekend of good weather. It gone down to a bone chlling 11.6°C (63°F). At least it’s bone chlling when your fans are blowing on you full blast.  It’ll be gone tomorrow as the 90% humidity returns. So will the air conditioning. As much as I hate using it, I just can’t stand the high humidity. It feels like you can’t loose any heat.

It’s been a rough summer for humidity. I’ll need to hop on the bike, as it’s like being in AC when you’re riding at speed. Plus I need to shed some of the weight I’ve gained from not riding.

Heat is back

Here in sunny greater Chicagoland. Yesterday was bad, today is even worse. Tomorrow is supposed to be bad too. Here look:

HOT weather
Weather chart for 2018JUN30

Unfortunately, probably due to the MS, I have learned to hate those days with a passion. If I’m not in a temperature controlled environment I am going to be sluggish all day. It’s not because I don’t want to do anything (which is likely the casse anyway), but because the heat just saps me of energy. Required effort to get things done is multiplied. That and the motivation to get things done just tanks. Add on top of it my three destructors and life is hard. I can’t clean because of the constant distractions. I can, but the little bit of motivation will have to last me all day to clean the kitchen. Something I should be able to do in a couple of hours.

So what is the takeaway. If you have MS and three destructors during a heatwave, your’e boned. Better learn to live with filth or your going to expend every bit of energy trying to fruitlessly clean house while your kids absolutely destroy it.

Damn it, and I’m trying to bring a more positive vibe to this blog….FAIL.

I’d Like to Thank

the Cantalupo family for making MS camp possible this year, in which we sent our oldest daughter.  She’s been gone for a week…the longest ever going without her. In fact there was no electronic devices allowed at camp (but you could have them on the bus), so all I had to rely on was the photos that my wife showed me that the camp had posted on bookface.  It looked like fun, I hope it was. I’ll find out after Shelby picks her up this evening.

MSYC2018
Camp Icaghowan in Amery, WI

Uh, mother nature

It has been waaaayyy too hot for me this early summer. A heat warning is issued for Sunday. The day my son has a baseball game.

It’s cool. I’ve only have multiple sclerosis. Which definitely does not like the heat and makes my body feel useless when it’s so hot and humid. So thanks for nothing mother nature. Though I think it is really the fault of the climate deniers, but that is another story for another day.

So yeah, climate…some good news. My buddy’s guy came over and checked out our air conditioner. Twas overfilled as I had suspected. luckily, it seems as though nothing really got blown up. So very very lucky. He drained the excess R410a, and it’s not kicking off anymore. Luckily the AC unit is fairly new, so it was able to realize it was overcharged and was kicking off as a safety feature. Lucky, as it kept it from destroying itself. I am so thankful to Mark and Jaimie for coming out and getting my AC unit working again. It is so important on a level that non-MSers will never understand. Plus knowing that the AC isn’t broken anymore is such a load off my shoulders. Thanks guys.