Oh I Need My Ty

Bad. Actually. Badly. I need my Tysabri badly.

It was really warm midday. Nothing excessive, but up there. Especially in the baking sun. Which I was in while I was playing with Kei before the kids started getting home from school. We were playing hard – or at least it seemed to me. I was hot. I couldn’t cool off. Then it started happening….

I don’t know wheat to call it, but my vision was disturbed. It was hard to look at my phones keyboard. The specific key on which I was focusing was hardest to see.  It was weird. Really weird. It was, and this is the best way I could put it, like I had a tear in my vision. Or a jagged line of light, mostly concentrated in my left eye. Makes me think my right brain is the most afflicted.

I’m not sure what happened, but I’m betting it was the Multiple Sclerosis exacerbated by the heat. After a thorough freak-out in my head – a lot of what ifs, I sat down in the shade. Aside from getting eaten up by mosquitos – chilling in the shade wasn’t getting rid of the visual disturbance. So I went and filled my water bottle and soaked my cooling towel. Chilled out and tried to relax while I hopefully cooled off.

I eventually did, and the vision problem subsided. As always, it is the fear of possibly having an attack that scares me most. A lot of what ifs where going through my head during that time.

Now so very clearly I need my dose of Tysabri. Stat like!

I have to wait until Thursday for my dose. Wednesdays were taken. Two months out. Damn cancer patients : P