Wednesday

Wednesday is so close

I need my dose so badly

The  fatigue is here

This haiku is brought to you by a Multiple Sclerosis sufferer in need of his Tysabri administration. Me.

7 day warning

It is Wednesday, one more week until my infusion. The sweet relief that is Tysabri only awaits seven more days. I anxiously await its administration, and moreover, the relief that follows.

That does mean, on the other hand, there is at least one more week of pretty harsh knee pain* and general muscle tightness on the whole left side of my body. It started in my calf and worked its way all the way up my left side over the last decade. I really notice it in my neck during the weeks proceeding my infusion.

But lets not worry about now or even the time leading up to it. Or even the needle stick. Nor the PML risk. Think about the post infusion bliss that follows the dose of Tysabri. It’s worth it! A near normal life with MS.

 

*My knee feels like it really has to crack, but when I crack my knee it only relieves the pain/ache somewhat.

May?

I really, really enjoy eating very good food. If it’s not fast food, I’m trying to eat something quality and healthy. Then I read this title:

Intermittent fasting may benefit people with MS

(Emphasis mine)

Ok, it MAY help? Then I MAY try it.

Which means I won’t. I’ll need definitive proof that fasting helps with MS. Then I might try to stop eating so much. I do love good food, and even sometimes I’ll treat myself to s****y food. Sometimes I don’t eat much but often I eat too much. I love good food. I am not going to stop eating without proof that it helps.

 

 

Summer

Yes, complaining about the heat & humidity again. Specifically, how in my neck of the woods it seems to be insanely hot and humid though the weekend plus Monday for the last month.

It makes going outside tough. Everything I do seems harder. Yet, I preserver – or at least try. I’m going to try and get a bike ride in today. It won’t be too long, no Wisconsin or anything, probably just up to mchenry train station or down to the fox, depending on the wind.

I can’t use the weather as an excuse all the time!

Sorry Everybody

But the blog spammers have found my new blog and are creating new accounts on my site. I’ve had to disable the ability to register new accounts and delete all the users (except myself, of course).

For linkspam the unscroupulous go after my blog detailing my experience with MS. STAY CLASSY BLOG SPAMMERS. Lamers need a bot to do their work!

This in conjunction with the bookface integration not working and I fear my site will not get any traffic. Then again, when it was integrated with bookface, I don’t think anyone bothered coming here anyway. Still planning on fixing that…when I can.

And I’m awaiting my next Tysabri dose in two weeks! This is the period when I start feeling a sort of withdraw. And it’ll get worse until I am reupped on my Ty. Guess that’s the price you pay when your PML titre level is right in the danger zone.

Not that I’m complaining

But I woke up cold during the night.  After the blazing heat and HUMIDITY, we finally have a weekend of good weather. It gone down to a bone chlling 11.6°C (63°F). At least it’s bone chlling when your fans are blowing on you full blast.  It’ll be gone tomorrow as the 90% humidity returns. So will the air conditioning. As much as I hate using it, I just can’t stand the high humidity. It feels like you can’t loose any heat.

It’s been a rough summer for humidity. I’ll need to hop on the bike, as it’s like being in AC when you’re riding at speed. Plus I need to shed some of the weight I’ve gained from not riding.